The Impact of Stroke on Family Caregivers

Abstract

Research Objectives To illustrate the quality of life, lived experiences, and unmet needs of family members of individuals with stroke. Design Embedded within a cross-sectional design, a qualitative study was undertaken to explore the lived experiences of family caregivers. Using purposive sampling, family caregivers of individuals with stroke were recruited. Findings from semi-structured interviews were analyzed using a thematic approach. Setting Recruitment took place from the general community. Participants 17 adults (12 females, 5 males) were recruited. Participants had to be a (1) family member of an individual with first time stroke, (2) 18 years and above, and (3) have adequate communication skills. Interventions Not applicable. Main Outcome Measures An interview guide containing questions that probed the quality of life of family caregivers was used. Results Preliminary findings generated three themes: (1) trying to hold our lives together, (2) the road to normality is filled with uncertainties, and (3) the value in engaging a domestic helper. Many caregivers saw a disruption to their previous roles; thus, managed this by taking up new responsibilities and balancing between caregiving and other life commitments. The second theme demonstrated the desire to achieve normality; however, this was not a straightforward path. Some obstacles included fused relationships, and constant worrying. In the final theme, participants described the value of hiring a domestic helper in providing practical, and emotional support during times of uncertainty. Conclusions Family caregivers of individuals with stroke reported varying experiences. It is important to provide timely holistic support, and resources to ensure that family members are adequately prepared. Future studies can help to promote, develop, and evaluate the efficacy of family-centered programs to cater to the needs of family members after stroke. Author(s) Disclosures None. To illustrate the quality of life, lived experiences, and unmet needs of family members of individuals with stroke. Embedded within a cross-sectional design, a qualitative study was undertaken to explore the lived experiences of family caregivers. Using purposive sampling, family caregivers of individuals with stroke were recruited. Findings from semi-structured interviews were analyzed using a thematic approach. Recruitment took place from the general community. 17 adults (12 females, 5 males) were recruited. Participants had to be a (1) family member of an individual with first time stroke, (2) 18 years and above, and (3) have adequate communication skills. Not applicable. An interview guide containing questions that probed the quality of life of family caregivers was used. Preliminary findings generated three themes: (1) trying to hold our lives together, (2) the road to normality is filled with uncertainties, and (3) the value in engaging a domestic helper. Many caregivers saw a disruption to their previous roles; thus, managed this by taking up new responsibilities and balancing between caregiving and other life commitments. The second theme demonstrated the desire to achieve normality; however, this was not a straightforward path. Some obstacles included fused relationships, and constant worrying. In the final theme, participants described the value of hiring a domestic helper in providing practical, and emotional support during times of uncertainty. Family caregivers of individuals with stroke reported varying experiences. It is important to provide timely holistic support, and resources to ensure that family members are adequately prepared. Future studies can help to promote, develop, and evaluate the efficacy of family-centered programs to cater to the needs of family members after stroke.