The IBD Registry: a patient management system to improve practice

Abstract

In recent months, a database has been launched that, for the first time, allows clinicians to collect UK-wide information on inflammatory bowel disease (IBD), thus driving improvements in care and standards. A patient management system (PMS) has also been created to support IBD clinical teams in providing high quality care and to allow easy input of information at the time of a consultation. The system then feeds data into the registry automatically. This article reviews the database and PMS, which are known as the IBD Registry. During the pilot phase, both clinical teams and their patients found the PMS to be beneficial, since all the relevant patient information is summarised in one place and is easily accessible. Local management reports can also be generated for service planning/monitoring, as well as patient summaries and GP letters.