'The hospital and everyday life are two worlds': Patients' and healthcare professionals' experiences and perspectives on collaboration in the kidney transplantation process.

Charlotte Nielsen,Jane Clemensen,Hanne Agerskov,Claus Bistrup

doi:10.1002/nop2.349

Charlotte Nielsen, Jane Clemensen + Show 2 more

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https://doi.org/10.1002/nop2.349

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Abstract

AimTo explore patients’ and healthcare professionals’ experiences and perspectives on collaboration in the kidney transplantation process.DesignA qualitative study with a phenomenological‐hermeneutic approach.MethodParticipant observation and interviews were conducted with 18 patients, together with a focus group with eight healthcare professionals from April 2016–January 2017. The data analysis was inspired by Ricoeur's theory.ResultsWhile patients acknowledged that the healthcare professionals were experts, they also requested an everyday life approach to treatment and care, because both professional knowledge and everyday life experiences were needed to manage everyday life. A contrast between patients’ experiences and healthcare professionals’ knowledge was identified, and the empowerment approach could be a way to combine the different perspectives.

Highlights

This paper presents an explorative qualitative study of collaboration between patient and healthcare professional (HCP) in the kidney transplantation process
This paper reports from the first phase and includes patients’ experiences of the kidney transplantation process from acceptance for transplantation until four months post‐ transplantation and the HCPs’ perspectives on the transplantation process
Two varying perspectives are present in the collaboration between patient and HCP in the kidney transplantation process, and a con‐ trast is identified between professional knowledge and everyday life experiences

Summary

Introduction

This paper presents an explorative qualitative study of collaboration between patient and healthcare professional (HCP) in the kidney transplantation process. A systematic review of literature exploring patients’ perspectives has identified the main challenges concerning self‐management in kid‐ ney transplant recipients (Jamieson et al, 2016). They found self‐man‐ agement is facilitated by a motivation towards adherent behaviour, a feeling of control over one's health, respect for and indebtedness to the donor and gratitude towards the medical team. Lack of self‐management can occur because of insufficient guidance, forgetfulness, distress or other factors that challenge adherent be‐ haviour It could be caused by the patients’ feelings that everyday life is being overshadowed by disease and by being a patient. To initiate self‐management, the relationship between patient and HCP has to be built on trust (Been‐Dahmen et al, 2018)

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