The Handbook of Ethical Research with Ethnocultural Populations & Communities

Abstract

Acknowledgements Preface - Richard Suinn Introduction: Our Shared Journey: Lessons from the Past to Protect the Future - Joseph E. Trimble and Celia B. Fisher PART I. FOUNDATIONS OF ETHNOCULTURAL RESEARCH AND RESEARCH ETHICS 1. A Goodness-of-Fit Ethic for Multicultural Research - Celia B. Fisher and Kathleen Ragsdale 2. Scientist-Community Collaborations: A Dynamic Tension Between Rights and Responsibilities - John Fantuzzo, Christine McWayne, and Stephanie Childs 3. First, Do No Harm: Culturally Centered Measurement for Early Intervention - Nancy Busch-Rossnagel PART II. RESEARCH ETHICS CHALLENGES INVOLVING DIVERSE ETHNOCULTURAL GROUPS 4. Addressing Health Disparities Through Relational Ethics: An Approach to Increasing African American Participation in Biomedical and Health Research - Scyatta A. Wallace 5. In Their Own Voices: American Indian Decisions to Participate in Health Research - Tim D. Noe, Spero M. Manson, Calvin Croy, Helen McGough, Jeffrey A. Henderson, and Dedra S. Buchwald 6. I Wonder, Why Would You Do It That Way? Ethical Dilemmas in Doing Participatory Research With Alaska Native Communities - Gerald V. Mohatt and Lisa Thomas 7. Ethical Conduct of Research With Asian and Pacific Islander American Populations - Jean Lau Chin, Jeffery Scott Mio, and Gayle Y. Iwamasa 8. Ethical Community-Based Research With Hispanic or Latina(o) Populations: Balancing Research Rigor and Cultural Responsiveness - Felipe Gonzalez Castro, Rebeca Rios, and Harry Montoya 9. Ethical Issues in Research With Immigrants and Refugees - Dina Birman PART III. SOCIALLY SENSITIVE RESEARCH INVOLVING ETHNOCULTURAL FAMILIES AND COMMUNITIES 10. Ethical Research With Ethnic Minorities in the Child Welfare System - Katherine Ann Gilda Elliott and Anthony Urquiza 11. With All Due Respect: Ethical Issues in the Study of Vulnerable Adolescents - Ana Marie Cauce and Richard H. Nobles 12. Ethical Research Dilemmas With Minority Elders - Susan Krauss Whitbourne, Joshua R. Bringle, Barbara W. K. Yee, David Chiriboga, and Keith Whitfield 13. Changing Models of Research Ethics in Prevention Research Within Ethnic Communities - Fred Beauvais 14. Ethnographic Research on Drugs and HIV/AIDS in Ethnocultural Communities - Merrill Singer and Delia Easton PART IV. THE RIGHTS AND RESPONSIBILITIES OF INDIVIDUALS, COMMUNITIES, AND INSTITUTIONS 15. Safeguarding Sacred Lives: The Ethical Use of Archival Data for the Study of Diverse Lives - Copeland H. Young and Monica Brooker 16. Ethical Issues When White Researchers Study ALANA and Immigrant People and Communities - Janet E. Helms, Kevin T. Henze, Jackquelyn Mascher, and Anmol Satiani 17. Coda: The Virtuous and Responsible Researcher in Another Culture - Joseph E. Trimble and Gerald V. Mohatt Name Index Subject Index About the Editors About the Contributors