The gastric cancer survivorship experience: A global perspective.

Abstract

24 Background: The World Health Organization estimates 1.03 million new gastric cancer cases will be diagnosed in 2018. Globally, gastric cancer is the 5th most common cancer and the 3rd most common cause of cancer death. Our study explores the gastric cancer survivorship experience throughout the care continuum. Methods: The Ruesch Center for the Cure of Gastrointestinal Cancers and the GI Cancers Alliance developed a global gastric cancer advocacy initiative (December 2017) to better understand the patient experience. As convener, we facilitated numerous meetings with international advocacy organizations; healthcare professionals; patients and caregivers to gain a global perspective. Based on our goal to help improve patient outcomes, our initiative included analysis to support: efforts to increase earlier detection; provide access to best treatment protocols including clinical trials; enhanced patient education and patient-centered communication. A key element of our research began with a global patient survey, focus groups and interviews. Results: 521 gastric cancer patients (54% female 46% male) participated in the international survey (April-May 2018). 49% indicated a ‘poor’ quality of life; 91% indicated survivorship care gaps; 42% were Stage 4. North and South America, Europe, Asia, and Australia were represented. Follow-up interviews and focus groups (July-September 2018) provided valuable insight and a greater understanding of the patient profile. Conclusions: Additional educational and supportive services are needed to meet patient unmet needs. We will continue providing key stakeholder platforms to address patient concerns; create meaningful and relevant patient education; continue outreach leading to increased patient empowerment; convene and work with global partners improving patient quality of life to ultimately achieve better patient outcomes.