The feasibility and preliminary efficacy of a novel, online culturally tailored psychoeducation course for Black dementia caregivers

Abstract

AbstractBackgroundMany psychoeducation interventions utilizing different distant learning modalities to engage caregivers have been effective in enhancing caregiving mastery, but few programs have been specifically adapted to develop mastery in Black caregivers (Gallagher‐Thompson & Coon, 2007; Pinquart & Sörensen, 2006). The purpose of this study was to assess the feasibility and preliminary efficacy of the novel Caregiving while Black psychoeducation course (CWB). CWB was co‐produced by Black caregivers, persons living with dementia, and healthcare professionals. Caregivers from across the United States participated in the pilot study and engaged in ∼10 hours of asynchronous, online content related to healthcare system navigation, managing home life, and caregiver self‐care topics.MethodUsing quantitative and qualitative methods, caregivers were allotted 10‐weeks to complete the course and were quantitatively assessed on burden, depression, anxiety, and mastery at baseline, midpoint, and end of study. Caregivers then participated in an optional qualitative assessment (semi‐structured interview) of their experiences with course engagement. Descriptive statistics and t‐tests were used for quantitative data analysis and qualitative data were thematically analyzed.ResultOf the 75 caregivers enrolled, 31 were withdrawn to reasons including personal illness, death of care recipient, and reporting being too busy. Sixty‐four caregivers attempted the course with 32 completing the course within the timeframe. Quantitative data revealed significant improvement in caregiver depression, burden, and role strain. Caregiver mastery from baseline to completion increased 0.42 points. Twenty‐nine caregivers participated in a qualitative assessment which produced 5 overarching themes: Comfortability with a Culturally Tailored Course, Experiences Navigating the Course Platform; Utility of Course Resources; Time as a Barrier and Facilitator; Familial and Community Engagement.ConclusionFindings confirmed CWB’s ability to improve Black caregivers’ emotional well‐being and sense of confidence and mastery in their caregiving role. Caregivers expressed their appreciation of a culturally tailored course to address their needs and greatly utilized the external resources the course offered. However, time and complexities with the course’s online platform served as a barrier for many, to optimize engagement with and even finishing the course. Study findings will help inform and fuel the success of the next iteration of the Caregiving while Black Course.