Abstract
to identify aspects that can influence the types of bonds developed in the social support network of family members of children with special health care needs. qualitative research conducted through interviews with 15 family members/guardians in the city of Rio de Janeiro, from January to February 2020. Sanicola's theoretical-methodological framework and Bardin's thematic analysis technique were used. social distancing, lack of responsibility for coordinating care, lack of supplies and lack of individualized care were weaknesses found in the families' social relationships. However, the bonds were strengthened by the relationship of familiarity and availability of professionals in the care of children with special health needs. understanding the configuration of primary and secondary social networks and the types of support offered can improve the care of children and strengthen bonds that provide security for families.
Highlights
METHODSChildren with special health care needs (CSHCN) are those who live with limitation, disability or an emotional, psychological or developmental condition
Studies show that chronic health problems in childhood associated with social vulnerability are a serious public health problem and a great challenge for the family and for the health professionals who provide them with care[6-10]
To identify aspects that can influence the types of bonds established in the social support network of family members of children with special health care needs
Summary
Children with special health care needs (CSHCN) are those who live with limitation, disability or an emotional, psychological or developmental condition. These children are more susceptible to complications and constantly require specialized health care[1-2]. In Brazil, there is no national epidemiological survey on the prevalence of these children, almost a quarter of Brazilian children have a chronic health condition[4], making them CSHCN. Compounding this problem, 47.8% of children aged 0 to 14 are in poverty and live in families with an income of about a quarter of the minimum wage per capita[5]. Studies show that chronic health problems in childhood associated with social vulnerability are a serious public health problem and a great challenge for the family and for the health professionals who provide them with care[6-10]
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