Abstract

BackgroundThe HIV treatment cascade is a tool for characterizing population-level gaps in HIV care, yet most adaptations of the cascade rely on surveillance data that are ill-suited to drive quality improvement (QI) activities at the facility level. We describe the adaptation of the cascade in health care organizations and report its use by HIV medical providers in New York State (NYS).MethodsAs part of data submissions to the NYS Department of Health, sites that provide HIV medical care in NYS developed cascades using facility-generated data. Required elements included data addressing identification of people living with HIV (PLWH) receiving any service at the facility, linkage to HIV medical care, prescription of antiretroviral therapy (ART), and viral suppression (VS). Sites also submitted a methodology report summarizing how cascade data were collected and an improvement plan identifying care gaps.ResultsTwo hundred twenty-two sites submitted cascades documenting the quality of care delivered to HIV patients presenting for HIV- or non-HIV-related services during 2016. Of 101 341 PLWH presenting for any medical care, 75 106 were reported as active in HIV programs, whereas 21 509 had no known care status. Sites reported mean ART prescription and VS rates of 94% and 80%, respectively, and 60 distinct QI interventions.ConclusionsSubmission of facility-level cascades provides data on care utilization among PLWH that cannot be assessed through traditional HIV surveillance efforts. Moreover, the facility-level cascade represents an effective tool for identifying care gaps, focusing data-driven improvement efforts, and engaging frontline health care providers to achieve epidemic control.

Highlights

  • The HIV treatment cascade is a tool for characterizing population-level gaps in HIV care, yet most adaptations of the cascade rely on surveillance data that are ill-suited to drive quality improvement (QI) activities at the facility level

  • Ensuring that all persons living with HIV (PLWH) receive high-quality medical care remains a top priority in efforts to end the HIV/AIDS epidemic in the United States, yet the realization of this goal remains a challenge

  • Challenges that were commonly encountered by sites in cascade construction included data missingness, delayed involvement of information technology personnel to query facility-wide data systems for identification of open patients, difficulties reconciling multiple data sources, and time costs associated with gathering and merging data contained in unstructured electronic medical record fields

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Summary

Methods

As part of data submissions to the NYS Department of Health, sites that provide HIV medical care in NYS developed cascades using facility-generated data. Cuomo launched the Ending the AIDS Epidemic Initiative, a 3-point plan to reduce the number of annual new infections in NYS to below 750 by 2020 [10]. In alignment with these activities, facilities that provide HIV care in NYS were instructed to develop facility-level HIV treatment cascades as part of required data submissions to the NYS HIV Quality of Care Program of the NYSDOH AIDS Institute. The full scope of the program’s activities has been described elsewhere [12].

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