The experiences of fathers who have a child with autism spectrum disorder: from birth to adulthood

Abstract

PurposeThe purpose of this study is to explore fathers’ experiences of raising a child with autism spectrum disorder (ASD), taking into consideration how this experience fluctuates as their child develops from infancy to adulthood.Design/methodology/approachSemi-structured interviews were used to investigate the experiences of fathers who have a young adult with ASD. Seven fathers participated in this study. Data was analysed using thematic analysis.FindingsFour themes were identified, these were: ubiquitous impact, divergent support, impeding factors and facilitating factors.Practical implicationsFindings from this study highlighted the pervasive impacts of having a child with ASD. This study highlighted the need to educate health-care professionals, the general public and prospective fathers. Creating “dads groups” could help to direct fathers towards other people who understand their situation. Finally, trialling methods to accelerate fathers’ acceptance, such as acceptance and commitment therapy (ACT), could help to reduce psychological stress.Originality/valueTo date, most research largely focusses on mothers’ experiences, as mothers are typically seen as the primary caregiver. Previous research also tends to focus on the earlier years of life. This research addresses the often-overlooked topic of fathers’ experiences, investigating their experience of having a child with ASD from birth through to adulthood.