The experience of being diagnosed with Parkinson's disease

Abstract

Being diagnosed with a chronic illness such as Parkinson's disease (PD) can have a considerable psychological impact on a person's life. However, this has been under explored and so it is unclear what support may be most beneficial at this time. This study therefore explored personal experiences of being diagnosed with PD. Six participants were interviewed and interview transcripts were analysed using thematic analysis. Three overarching themes emerged: ‘Understanding it is an important thing’—the value of knowledge; ‘You've got to get used to accepting the fact that you need help’—the social implications of being diagnosed with PD; and ‘I think you need to talk to somebody’—the importance of supportive others. The process of diagnosis was complex and often challenging for participants, with respect to their own understanding and that of others. Recommendations for future practice within specialist PD services are made, in order to improve the support that is offered at this time.