The evaluation of daily activity questionnaire for stroke survivors: cross-cultural adaptation, content validity and digitisation

Abstract

ObjectiveThe study's objective was to culturally adapt and digitise the Evaluation of Daily Activity Questionnaire (EDAQ), originally designed for rheumatoid arthritis and various other musculoskeletal conditions, creating a version for stroke survivors (EDAQ-SS). This adaptation also aimed to develop a comprehensive electronic Patient Reported Outcome Measure (ePROM) intended to refine stroke survivors' self-assessment of their daily activity limitations. Materials and methodsCross-cultural adaptation of the EDAQ was completed by a review of expert panel, which included healthcare professionals to increase the clarity and relevancy of the items, followed by cognitive debriefing interviews with British stroke survivors to rate their understanding of the questionnaire items. After developing the paper version of the questionnaire, this was digitised (eEDAQ-SS) and disseminated online via the Stroke Survivors Hub (SSHUB). Content validity of the EDAQ-SS was evaluated using the International Classification of Functioning (ICF) Core Set for Stroke. ResultsThe expert panel meeting (n:11) and cognitive debriefing interviews with stroke survivors (n:10) resulted in an EDAQ-SS with 160 items across 15 domains, which was understandable and relevant to stroke survivors. The SSHUB was deemed to be a user-friendly platform, providing easy access to eEDAQ-SS and aid self-assessment of daily activities of stroke survivors. Mapping the EDAQ-SS items to the ICF Core Set for Stroke demonstrated good content validity with 44/55 matching categories. ConclusionThe EDAQ-SS offers a comprehensive measure for self-assessment, which may serve to guide stroke survivors’ self-management by overcoming limitations of existing PROMs. Further psychometric testing of the EDAQ-SS and wider testing of the digital version is recommended. Contribution of the Paper•The Evaluation of daily activity questionnaire for stroke survivors (EDAQ-SS) is a culturally adapted, comprehensive PROM for British stroke survivors, enhancing self-assessment of daily activities.•Methodically developed using guidelines, expert feedback, and stroke survivor interviews, the EDAQ-SS ensures relevance and clarity.•The EDAQ-SS demonstrates good content validity against the International Classification of Functioning Core Set for Stroke, with potential to improve clinical practice by providing a detailed, sensitive measure to help stroke survivors and healthcare professionals identify and manage daily activity limitations more effectively.