Abstract
Preface.- Contents.- Introduction.- Part I Research biobanking: The traditional approach.- Consent to biobank research: one size fits all?- What No One Knows Can't Hurt you: The limits of informed consent in the emerging world of Biobanking.- Users and uses of the biopolitics of consent: a study of DNA banks.- Information rights on the edge of ignorance.- The Dubious Uniqueness of Genetic Information.- Duties and rights of biobank participants: Principled autonomy, consent, voluntariness and privacy.- Biobanking and Disclosure of Research Results: Addressing the tension between professional boundaries and moral intuition.- Biobanks and our common good.- Trust, Distrust and Co-Production: The Relationship between Research Biobanks and Donors.- Scientific citizenship, benefit, and protection in population based research.- Part II Research biobanking: towards a new conceptual approach.- Mapping the language of research biobanking: an analogical approach.- The use of analogical reasoning in umbilical cord blood biobanking.- The Alexandria Plan: Creating Libraries for Human Tissue Research and Therapeutic Use.- The Art of Biocollections.- The Health Dugnad: Biobank participation as the solidarity pursuit of the common good.- Embodied gifting: Reflections on the role of information in biobank recruitment.- Conscription to biobank research?- Ownership rights in research biobanks: Do we need a new kind of 'biological property'?- Legal challenges and strategies in the regulation of research biobanking.- Annexation of life: The biopolitics of industrial biology.- In the ruins of Babel: Should biobank regulations be harmonized?
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