The Effects of Chronic Illness on Roles and Emotions of Caregivers

Abstract

Approximately one fourth of the population is affected by chrome illness or disability (Schuster and Ashburn, 1992). It has been reported that caregivers of individuals with chronic illness or disability have feelings that were associated with their caregiving role. Olshansky (1962) described and termed these feelings “chronic sorrow.” This study looked at the intensity of chronic sorrow in caregivers of adults with mental illness, geriatric and pediatric individuals with chronic illnesses. We also examined the possible relationship between the caregiver's roles and the intensity of chronic sorrow they experienced. The feelings of caregivers were analyzed at different stages during the caretaking period. Using quantitative measures this study determined that chronic sorrow can linger well past diagnosis and that there are trigger events that can increase chronic sorrow. Armed with this knowledge occupational therapists can make interventions that will more fully address the client and caregivers needs.