Abstract
BackgroundDisease-specific, multimodal inpatient rehabilitation programmes are designed to improve the physical, emotional, and social functioning of patients with cystic fibrosis (CF).This study investigates the effects of a 4-week inpatient rehabilitation program on health-related quality of life (QL).Methods84 German patients with CF (16–62 years of age, FEV1 mean 52.9% of the predicted), participating in an inpatient rehabilitation programme, completed the Questions on Life Satisfaction-Modules (FLZM) at the beginning and one month after the end of intervention. The FLZM allows the multi-dimensional evaluation of subjectively perceived satisfaction with general and health-specific life domains. In addition, medical parameters (FEV1, Body Mass Index) and socio-demographic data were registered.ResultsCompared to the baseline scores, after rehabilitation, participants were significantly more satisfied with general, health-related, and CF-related aspects of their lives. Specifically, improvement was noted in the following items: breathing difficulties/cough, sleep, integration of therapy into daily routine, leisure activities, general health perception, physical condition and being free from anxiety.ConclusionComprehensive inpatient rehabilitation programmes are a promising strategy to improve the quality of life of adolescent and adult CF-patients.
Highlights
Disease-specific, multimodal inpatient rehabilitation programmes are designed to improve the physical, emotional, and social functioning of patients with cystic fibrosis (CF).This study investigates the effects of a 4-week inpatient rehabilitation program on health-related quality of life (QL)
Improvement was noted in the following items: breathing difficulties/cough, sleep, integration of therapy into daily routine, leisure activities, general health perception, physical condition and being free from anxiety
Comprehensive inpatient rehabilitation programmes are a promising strategy to improve the quality of life of adolescent and adult CF-patients
Summary
Disease-specific, multimodal inpatient rehabilitation programmes are designed to improve the physical, emotional, and social functioning of patients with cystic fibrosis (CF).This study investigates the effects of a 4-week inpatient rehabilitation program on health-related quality of life (QL). Disease-specific, multimodal inpatient rehabilitation programmes are designed to improve the physical, emotional, and social functioning of patients with cystic fibrosis (CF). A severe and progressive disease such as cystic fibrosis (CF) is characterised by limited life expectancy and physical impairment. It imposes considerable emotional stress on the individual and requires intensive and time-consuming daily therapy, which may have adverse effects on quality of life (QL). Disease-specific inpatient rehabilitation programmes in Germany consider the multi-dimensionality of CF The aim of these comprehensive interventions is to improve the patients' physical state of health and to optimize medical therapy, and to provide emotional support, improve adherence to therapy, and facilitate social integration. Several specialized inpatient rehabilitation centres for patients with CF provide multi-modal disease-specific intervention programmes, including IV therapy if necessary, patient education, sports and training, nutri-
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