The Biopolitics of Policy-Making: Medical Activism in the Century of the Brain

Abstract

This article argues that advances in biotechnology and the life sciences, particularly the ongoing neuro-revolution, have changed the relationship between science and politics. Since the “Decade of the Brain” project of the 1990s, new neuroscientific terms and biological understandings of the self have given rise to what Paul Rabinow refers to as “biosociality,” that is, groups that organize around, and identify with, a specific disease or disability to lobby for recognition, better treatment options, access to resources, and, in some cases, equal rights. This biopolitical relationship between citizens and scientific experts in the policy-making process can be seen in the current debate between the neurodiversity movement and anti-autism groups over the needs of autistic people. However, this article shows that within policy discussions, both groups have been (re)constructed by competing medical discourses and illness narratives in a way that has limited their ability to voice their needs and effectively evoke policy change.