The Autism Intervention Research Network on Physical Health (AIR-P) Charter.

Abstract

In the United States, autistic individuals experience disparate physical- and mental-health-related quality of life across the lifespan relative to non-autistic individuals. In recognition of these disparities, the Autism Intervention Research Network on Physical Health (AIR-P) seeks to establish and maintain a research network to enhance the health and well-being across the lifespan of autistic individuals, particularly for underserved and vulnerable populations. This charter serves as the initial charter for the AIR-P; as a network, we plan to continue to revise and elaborate on the contents of this charter as our research advances and as we continue to forge new partnerships and collaborations.The purpose of the AIR-P is to support innovative life course intervention research that promotes optimal health and well-being across the lifespan of autistic individuals in 6 key areas: (1) primary care services and quality, (2) community-based lifestyle interventions, (3) gender, sexuality, and reproductive health, (4) health systems and services, (5) neurology, and (6) genetics. The network will establish and maintain an interdisciplinary, multicenter research network for scientific collaboration and infrastructure to increase the life expectancy and quality of life for autistic individuals, with a focus on underserved populations.As a network, the AIR-P aligns with the neurodiversity movement and views autism as an identity akin to gender and race, not a condition that requires a cure. This is reflected in our approach to promoting the health and well-being of autistic individuals.All research supported within the network will be vetted and/or codeveloped by the Autistic Researcher Review Board, caregivers and family members of autistic individuals, and other stakeholders.The network will create an infrastructure for anyone, including early-career investigators and investigators seeking to begin a program of research in autism and physical health, to conduct research related to the physical health of autistic individuals. Any individual or organization may join the network, as well as access and contribute to the robust research infrastructure we are developing and maintaining.Our network seeks to advance research on physical health beyond a medical model and deficit-oriented approach toward promoting the multidimensional health, well-being, and thriving of autistic individuals and their families.The network seeks to address disparities in the access, quality, and utilization of health-promoting services and supports for autistic individuals, particularly for underserved or marginalized populations. The network will aim to ensure that all research supported within the network benefits participants representative of low-income, racial or ethnic minority, immigrant, female, Indigenous, geographically remote, gender identity minority, and sexual orientation minority populations. This may require modifications to usual recruitment, data collection, and analytic methods that mitigate barriers to participation.The AIR-P seeks to advance the evidence base of high-quality research across the lifespan for autistic individuals and their families. Areas in which there is currently no existing evidence base, the AIR-P seeks to spur innovative research and engage experts across the United States to guide policy and clinical practice in these areas.The mission of the AIR-P is to develop a robust research infrastructure that will foster measurable improvements in optimal physical health and well-being across the lifespan of autistic individuals and their families.The AIR-P envisions a future in which autistic individuals experience optimal multidimensional health and well-being.The following values are central to all of our activities: Respect, integration, and equitable access to supports and services that promote optimal health and well-being for autistic individualsSelf-determination and integration of autistic individuals in all facets of the networkIndividualized and culturally appropriate health careDiversity within the network, programs, and societyStewardship of public resources and measurable accountabilityA commitment to helping individuals by strengthening communities and systems