Abstract
BackgroundThere are knowledge gaps about the life situation for people ageing with Parkinson’s disease (PD), with virtually no understanding of home and health dynamics. Therefore, the aim of the present study was to explore the association between aspects of health and objective as well as perceived housing in people with PD.MethodsParticipants were recruited from three hospitals in the region of Skåne in southern Sweden. The sample for the present study included 231 (62 % men) participants with PD, with a mean age of 75 (min-max, 45–93) years. The data collection procedure included a self-administered postal survey and a subsequent home visit where structured interviews, observations and clinical assessments were administered. To study the association between aspects of health and housing canonical correlation was applied. Twelve variables (6 in the health and 6 in the housing set) were included. This corresponds to about 20 individuals per variable and is considered sufficient to accurately interpret the largest (i.e., first) canonical correlation.ResultsThe analysis between the health variables and housing variables set yielded two significant pairs of variates with the canonical correlations 0.68 (p < 0.0001) and 0.33 (p = 0.0112), respectively. For the first pair of variates the canonical R2 was 0.46. The results showed that external control beliefs and behavioral aspects of meaning of home contributed the most to the housing variate, whereas difficulties/dependence in activities of daily living (ADL) and functional limitations contributed the most to the health variate. Although a significant relationship was found for the second canonical correlation, the shared variance between the two variates was considerably lower; R2 = 0.11.ConclusionsThis study suggests that people with PD who have more functional limitations, difficulties in ADL and are more dependent perceive their homes as less meaningful from a behavioral perspective. Moreover, they tend to rely on external influences managing their housing situation. With this kind of knowledge at hand, health care and social services professionals are in a better position to observe and efficiently address problems related to health and housing among people with PD.
Highlights
There are knowledge gaps about the life situation for people ageing with Parkinson’s disease (PD), with virtually no understanding of home and health dynamics
It involved very old single community-living people; the results indicated that very old people who perceive their home as meaningful and useful, and who think that external influences are not responsible for their housing situation are more independent in daily activities and have a better sense of well-being [8]
The results show that external control beliefs and behavioral aspects of meaning of home contribute the most to the housing variate, whereas activities of daily living (ADL) difficulties/dependence and functional limitations contribute the most to the health variate
Summary
There are knowledge gaps about the life situation for people ageing with Parkinson’s disease (PD), with virtually no understanding of home and health dynamics. A previous study by Oswald et al used canonical correlations in order to study the relationships between health and housing in five European countries It involved very old single community-living people; the results indicated that very old people who perceive their home as meaningful and useful, and who think that external influences are not responsible for their housing situation are more independent in daily activities and have a better sense of well-being [8]. To date, such relationships have not been studied with other sub-groups of the ageing population and with little attention to specific diagnoses
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