Abstract

Background: The purpose of this article is to update the diagnostic assessment, therapeutic approach, and 12–18 month follow-up of patients added to the Italian Lombardy Attention Deficit Hyperactivity Disorder (ADHD) Register. Methods: Medical records of patients added to the Registry from 2011 to 2021 were analysed. Results: 4091 of 5934 patients met the criteria for a diagnosis of ADHD, and 20.3% of them presented a familiarity with the disorder. A total of 2879 children (70.4%) had at least one comorbidity disorder, in prevalence a learning disorder (39%). Nearly all (95.9%) received at least one psychological prescription, 17.9% of them almost one pharmacological treatment, and 15.6% a combination of both. Values of ≥5 of the Clinical Global Impression—Severity scale (CGI-S) are more commonly presented by patients with a pharmacological prescription than with a psychological treatment (p < 0.0001). A significant improvement was reported in half of the patients followed after 1 year, with Clinical Global Impression—Improvement scale (CGI-I) ≤ 3. In all, 233 of 4091 are 18-year-old patients. Conclusions: A ten-year systematic monitoring of models of care was a fruitful shared and collaborative initiative in order to promote significant improvement in clinical practice, providing effective and continuous quality of care. The unique experience reported here should spread.

Highlights

  • Attention deficit hyperactivity disorder (ADHD) is a neurodevelopmental disorder that affects 5.9% of children and persists into adulthood for two-thirds of them [1,2], with great impairments in academic achievement and work [3]

  • The peak age of diagnosis of ADHD is in primary school children aged

  • We explored if there was an improvement on their Clinical Global

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Summary

Introduction

Attention deficit hyperactivity disorder (ADHD) is a neurodevelopmental disorder that affects 5.9% of children and persists into adulthood for two-thirds of them [1,2], with great impairments in academic achievement and work [3]. According to the national and international guidelines [8,9], the diagnosis of ADHD is based on a careful and systematic assessment of a lifetime history of symptoms, childhood onset, and impairment in some contexts (schools, relationships, home) [10]. Psychiatric comorbidity is a clinically important factor that contributes to the persistence of ADHD in adulthood [11]. Results: 4091 of 5934 patients met the criteria for a diagnosis of ADHD, and 20.3% of them presented a familiarity with the disorder. Values of ≥5 of the Clinical Global Impression—Severity scale (CGI-S) are more commonly presented by patients with a pharmacological prescription than with a psychological treatment (p < 0.0001). A significant improvement was reported in half of the patients followed after 1 year, with Clinical Global Impression—Improvement scale (CGI-I) ≤ 3.

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