Abstract

PurposeData from a national patient survey (N = 1,155) of the Swedish PAEHR “Journalen” users were analysed, and an extended version of the theory of technological frames was developed to explain the variation in the technological and informational framing of information technologies found in the data.Design/methodology/approachPatient Accessible Electronic Health Records (PAEHRs) are implemented globally to address challenges with an ageing population. However, firstly, little is known about age-related variation in PAEHR use, and secondly, user perceptions of the PAEHR technology and the health record information and how the technology and information–related perceptions are linked to each other. The purpose of this study is to investigate these two under-studied aspects of PAEHRs and propose a framework based on the theory of technological frames to support studying the second aspect, i.e. the interplay of information and technology–related perceptions.FindingsThe results suggest that younger respondents were more likely to be interested in PAEHR contents for general interest. However, they did not value online access to the information as high as older ones. Older respondents were instead inclined to use medical records information to understand their health condition, prepare for visits, become involved in their own healthcare and think that technology has a much potential. Moreover, the oldest respondents were more likely to consider the information in PAEHRs useful and aimed for them but to experience the technology as inherently difficult to use.Research limitations/implicationsThe sample excludes non-users and is not a representative sample of the population of Sweden. However, although the data contain an unknown bias, there are no specific reasons to believe that it would differently affect the survey's age groups.Practical implicationsAge should be taken into account as a key factor that influences perceptions of the usefulness of PAEHRs. It is also crucial to consider separately patients' views of PAEHRs as a technology and of the information contained in the EHR when developing and evaluating existing and future systems and information provision for patients.Social implicationsThis study contributes to bridging the gap between information behaviour and systems design research by showing how the theory of technological frames complemented with parallel informational frames to provide a potentially powerful framework for elucidating distinct conceptualisations of (information) technologies and the information they mediate. The empirical findings show how information and information technology needs relating to PAEHRs vary according to age. In contrast to the assumptions in much of the earlier work, they need to be addressed separately.Originality/valueFew earlier studies focus on (1) age-related variation in PAEHR use and (2) user perceptions of the PAEHR technology and the health record information and how the technology and information–related perceptions are linked to each other.

Highlights

  • Patient Accessible Electronic Health Records (PAEHRs) are implemented to meet multiple healthcare challenges, including those relating to ageing populations, information access and patient empowerment

  • There are, relatively few comprehensive investigations of the age-related differences in experiences relating to PAEHRs, even if multiple studies show that age is a central factor that influences PAEHR use (Crameri et al, 2020)

  • A parallel research gap, which is especially pertinent to older adults, relates to studies that make a distinction between experiences of PAEHRs as technology of accessing information and experiences with the electronic health record (EHR) information itself

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Summary

Introduction

Patient Accessible Electronic Health Records (PAEHRs) are implemented to meet multiple healthcare challenges, including those relating to ageing populations, information access and patient empowerment. Earlier research shows that the health and health information needs change and increase (Huvila et al, 2018) with age, while the propensity to adopt new technologies changes (Birkland, 2019) and sometimes decreases (Hong and Cho, 2016; Ker€anen et al, 2017; Vorrink et al, 2017; Pourrazavi et al, 2020) These two gaps point to a critical need for comprehensive comparative research on age-related variation in PAEHR usage and a better theory-informed analytical understanding of the differences and their underpinnings from the perspective of framing or perceiving PAEHRs as a distinct form of technology and as a source of a specific type of health information

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