Abstract
Background Since 2005 lay representatives (‘Research Partners’ – RP) have been involved in the work of a clinical trials unit and academic research centre. Their roles can include attending trial management groups, reviewing documents and chairing and presenting at sub-committees. Where recruitment of RPs was once opportunistic, RPs are now more formally recruited in conjunction with a national public involvement organisation. The impact of RPs at the research centre had not been examined in-depth, nor research partners’ or staff members’ experiences been previously explored. The TACT study was conducted to investigate the input and impact of RPs to ensure the best possible working partnership between the centre and the public is achieved.
Highlights
Since 2005 lay representatives (‘Research Partners’ – RP) have been involved in the work of a clinical trials unit and academic research centre
Semi-structured interviews were conducted with RPs (n= 10) and staff members (n=8)
Staff members stated that they were unclear about the degree to which RPs should be involved in their work and the processes involved in working alongside RPs
Summary
Since 2005 lay representatives (‘Research Partners’ – RP) have been involved in the work of a clinical trials unit and academic research centre. TACT: Research Partner involvement in a cancer clinical trials unit and academic research centre; evaluating its impact Noreen Hopewell-Kelly1*, Jim Fitzgibbon1, Jessica Baillie2, Annmarie Nelson1
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