Abstract

Background: American Muslims tend to hold more negative attitudes towards organ donation than other American populations, and these attitudes are contributed to by gaps in biomedical and religious knowledge. As a result, there is significant need for religiously-tailored health education on organ donation within this community. Thus our study sought to test the effectiveness of a mosque-based, religiously-tailored health education program that addressed biomedical and religious knowledge gaps regarding living organ donation amongst Muslim Americans.
 Methods: A randomized, controlled, cross-over trial of religiously-tailored educational workshops held at four mosques in Washington D.C. and Chicagoland. Mosques are randomized into early and late intervention arms and participants are recruited at worship services and other mosque events. The primary study outcomes are changes in biomedical and religious knowledge regarding living organ donation. Secondary outcomes include change in procedural knowledge about the process and types of living organ donation, beliefs regarding organ donation, and religious knowledge regarding end-of-life care.
 Funding and Ethics: This study is supported by a grant from the U.S. Human Services Health Resources and Services Administration and received ethics approval from the University of Chicago’s Biological Sciences Division Institutional Review Board.

Highlights

  • 1.1 Background and rationale The disparity between supply and demand for life-saving and/or life-sustaining organs is well-known and contributes to over 140 people on the waiting list dying per week in the United States (U.S Department of Health and Human Services, 2013)

  • Given that our intervention is focused on religious dimensions of living organ donation, and that we expect differential response based on participant religiosity, surveys incorporate a modified religiosity measures that we have found to predict Muslim health behaviors and attitudes

  • This study takes a balanced approach to education regarding organ donation ethics

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Summary

Introduction

While 35,905 African Americans and 10,233 Asians are currently on the transplant waiting list, there were only 575 and 306 living donors from each community respectively in 2018 (Health Resources and Services Administration). There is a critical need for targeted programs that increase awareness about organ transplantation processes and disparities among minority communities. American Muslims tend to hold more negative attitudes towards organ donation than other American populations, and these attitudes are contributed to by gaps in biomedical and religious knowledge. There is significant need for religiouslytailored health education on organ donation within this community. Our study sought to test the effectiveness of a mosque-based, religiously-tailored health education program that addressed biomedical and religious knowledge gaps regarding living organ donation amongst Muslim Americans

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