STUDI FENOMENOLOGI PENGALAMAN KELUARGA SEBAGAI PRIMARY CAREGIVER DALAM MERAWAT LANSIA DENGAN DEMENSIA DI KABUPATEN JOMBANG

Abstract

Primary family caregiver is the closest person whose main function is the care of elderly dementia at home. They not only take care of elderly dementia alone, but also they have other roles and functions within the family. Primary family caregivers often feel a negative impact such as psychological, social, and financial disorders with the elderly dementia at home. Their dillemas conditions and consequences as a result of caring for elderly people with dementia at home develop researcher’s spirit to explore the experience of the family as the primary caregiver in caring for the elderly with dementia in Jombang. The researchers used a qualitative design with interpretive phenomenological approach, the retrieval of data using in-depth interviews with semi-structured interview guide and field notes involve 5 participants. This research resulted in four themes (1) an overview of the primary family caregivers to elderly dementia (2) the condition of elderly dementia (3) consequences of elderly dementia at home (4) act of primary family caregiver. Primary family caregiver get an overview from the ability to think and feel deeply, it is important to establish a sense of empathy as a foundation in performing maintenance actions despite obstacles during the treatment process. Negative effect that primary family caregiver receives makes them vulnerable to the risk of mental disorders. Caring for elderly dementia is difficult to do if only rely on experience alone, therefore primary care giver need for strength.