Abstract
BackgroundPeople with profound intellectual and multiple disabilities (PIMD) have a combination of severe intellectual disability, extensive physical impairment, sensory impairments and medical health problems. There is, however, a lack of evidence-based physical and health-promoting interventions for people with PIMD. ObjectiveStructured Water Dance Intervention (SWAN) is a new method developed to fill this gap. This paper reports a protocol for an intervention study which aims to evaluate SWAN with regard to its effects on physiological, psychological and social health-related variables as well as its cost-effectiveness and potential for implementation in health care. MethodsThe evaluation of SWAN is performed in a multi-center randomized crossover study. Data is collected through cortisol measurement, physiological assessments, proxy ratings, video observations and interviews. ConclusionsThis is one of few attempts to evaluate rigorously an innovative intervention for people with PIMD, a group that is rarely considered for health promotion interventions. This study will provide important information about the efficacy, cost-effectiveness and potential to implement SWAN in health care.
Highlights
People with profound intellectual and multiple disabilities (PIMD) have a combination of profound intellectual disability and physical impairment, as well as additional sensory impairments, epilepsy or major medical health problems [1]
This paper describes the Structured Water Dance Intervention (SWAN) evaluation study rationale and design, and provides information on the effects and efficacy of SWAN for people with PIMD as well as information on cost effectiveness and on obstacles and enabling factors for the implementation of SWAN in health care settings
It may be reasonable to assume that people with fewer resources will have similar needs and derive similar benefits from SWAN
Summary
People with profound intellectual and multiple disabilities (PIMD) have a combination of profound intellectual disability and physical impairment, as well as additional sensory impairments, epilepsy or major medical health problems [1]. People with profound intellectual and multiple disabilities (PIMD) have a combination of severe intellectual disability, extensive physical impairment, sensory impairments and medical health problems. There is, a lack of evidence-based physical and health-promoting interventions for people with PIMD. This paper reports a protocol for an intervention study which aims to evaluate SWAN with regard to its effects on physiological, psychological and social health-related variables as well as its cost-effectiveness and potential for implementation in health care. This study will provide important information about the efficacy, cost-effectiveness and potential to implement SWAN in health care
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