Strategies to Motivate Cancer-Affected Individuals and Their Families to Mobilize Their Kith and Kin, Neighbours and Community to Assess Their Awareness Level to Accept and Attend Screening Clinic to Prevent Cervical Cancer

Abstract

Background and context: Cervical cancer is second most common cancer among women across the world. It is a public health problem especially in a developing country like India, as it alone accounts for one-quarter of the worldwide burden of cervical cancer. It is estimated by ICMR that a total of 100,000 new cases were diagnosed in 2016. This figure is expected to touch 1,04,000 during 2020. If treated in early stages more than 90% 5-year survival may be expected. However, less than 10% of our patients are diagnosed early resulting in an overall poor outcome. We do not have any organized national program for cervical cancer screening that might help in reducing the incidence of and death from cervical cancer. Aim: The aim of this study was to evaluate the efficacy of establishing a hospital-based opportunistic screening clinic with the underlying intention of disseminating awareness and knowledge by empowering cancer affected women to mobilize women folks or relatives known to them for voluntary participation in screening clinic. Strategy/Tactics: We have initiated the following measures: 1. Enlisting the phone numbers of female cancer patients from hospital records and contacting their families for participating in the screening clinic. 2. One to one counseling of patients suffering from any other cancer and involving their accompanying family members to avail the facility. 3. Encouraging them to bring their neighbors, relatives, friends to participate. 4. To identify patient representatives involved in community work like NGOs, clubs, religious institutes etc. and empower them with knowledge for motivating others to participate. 5. Development of IC (information and communication) materials like standees, leaflets, audio visuals for people waiting in hospital lobby. 6. Involving the male members of the family in encouraging the women to participate in the screening. 7. Assess the awareness level of women participating in the screening clinic. Program/Policy process: To create awareness and empower the affected cancer people and their relatives/attendants to participate and to mobilize the community for voluntary participation in screening clinic for prevention of cervical cancer. Outcomes: The outcome measure is assessed by the number of healthy women of any age coming forward to attend the screening/vaccination/awareness clinic per one cancer affected women. We have already registered 270 participants and screened 268 women for cervical cancer. Seventeen women were detected with HPV infection and underwent colposcopy. Interest in vaccination of young girl in the family was generated by people visiting our hospital. What was learned: The strategy to establish “screening clinic” for women with help of cancer patients has proved to be effective in reaching out to the community through the involvement of their kith and kin.