Strategies to improve rural african american (AA) participation in stroke prevention research

Abstract

Background: Rural communities and AAs historically have distrust of both doctors and researchers. These populations have high rates of CVD and are not knowledgeable about stroke prevention strategies. Hypothesis: Rural AAs are likely to attend and benefit from stroke projects using culturally compatible recruitment and research methods. Methods: Focus groups (facilitated discussions) were held to assess knowledge of stroke and education on stroke prevention. Recruitment of rural AA WV participants was evaluated following a number of strategies including mailings, announcements and invitations by community leaders. Results: Participants responded (46%) to personal invitations from community leaders rather than community announcements or mailings. AAs were comfortable with a culturally congruent format (focus groups) as it allowed them to share their knowledge. Higher attendance rates were noted for sessions held in private settings. Twenty-five percent of participants spontaneously asked to participate in future research projects. Conclusion: Use of focus groups as a social and narrative method more culturally compatible with AA communication and interaction patterns should enhance their research participation and satisfaction. A positive research experience as well as education about the need for minority involvement may encourage participation in future studies.