Stigma and Migraine: Developing Effective Interventions.

Abstract

Purpose of ReviewMigraine and other primary headache disorders do not receive adequate research funding, medical resources, or other forms of structural support relative to their prevalence and the disability they cause. In recent research, scholars have argued that stigma associated with headache disorders explains some of this discrepancy.This review will discuss (1) the factors contributing to stigma toward migraine and other primary headache disorders, (2) how structural and enacted stigma may perpetuate individual disability, (3) the impact of internalized stigma, and (4) interventions to mitigate stigma toward headache disorders with an emphasis on outcome monitoring. The review will also propose new areas of stigma research in need of further investigation.Recent FindingsRecent research shows that discrimination can exacerbate chronic pain.SummaryStigma profoundly affects everything from the allocation of federal research funds and healthcare resources to individual patients’ self-efficacy and ability to care for themselves. Understanding the stigma of migraine and learning how to develop effective interventions to mitigate this stigma will increase access to appropriate migraine care, improve healthcare providers’ ability to care for their migraine patients, and help advocates reverse policies that discriminate against those with migraine. It is important to closely monitor outcomes of anti-stigma efforts for both positive and negative consequences and take note of outcomes and “lessons learned” from anti-stigma campaigns for other diseases.Supplementary InformationThe online version contains supplementary material available at 10.1007/s11916-021-00982-z.