Standardization work on personalized eHealth systems

Abstract

For widespread adoption of eHealth, and to achieve eInclusion and eAccessibility, eHealth systems must be tailored to each individual user's needs and preferences. Many eHealth products and services contain adjustable parameter settings, but they are specific to each product and unrelated to each other. This paper describes ongoing work to establish standards and guidelines for personalization of eHealth systems, taking into account the needs of all users, both clients and caregivers. The standard builds on a generic 'user profile', which stores data about the users, their preferences and their context. This profile can then be used by eHealth services and devices to ensure a user experience tailored to each person. The work surveys relevant areas of personalization, like identity management, profile management etc, addressing in depth those aspects of personalization that are specific to eHealth: User capabilities, care provider roles and functions, health related information, and confidentiality measures.