Abstract

BackgroundAdequate care for individuals living with chronic illnesses calls for a healthcare system redesign, moving from acute, disease-centered to patient-centered models. The aim of this study was to identify Belgian stakeholders’ perceptions on the strengths, weaknesses, opportunities and threats of the healthcare system for people with chronic diseases in Belgium.MethodsFour focus groups were held with stakeholders from the micro and meso level, in addition to two interviews with stakeholders who could not attend the focus group sessions. Data collection and the discussion were based on the Chronic Care model. Thematic analysis of the transcripts allowed for the identification of the strengths, weaknesses, opportunities and threats of the current health care system with focus on chronic care.ResultsInformants stressed the overall good quality of the acute health care system and the level of reimbursement of care as an important strength of the current system. In contrast, the lack of integration of care was identified as one of the biggest weaknesses of today’s health care system, along with the unclear definitions of the roles and functions of health professionals involved in care processes. Patient education to support self-management exists for patients with diabetes and/or terminal kidney failure but not for those living with other or multiple chronic conditions. The current overall fee-for-service system is a barrier to integrated care, as are the lack of incentives for integrated care. Attending multidisciplinary meetings, for example, is underfinanced to date. Finally, clinical information systems lack interoperability, which further impedes the information flow across settings and disciplines.ConclusionOur study’s methods allowed for the identification of problematic domains in the health system for people living with chronic conditions. These findings provided useful insights surrounding perceived priorities. This methodology may inspire other countries faced with the challenge of drafting reforms to tackle the issue of chronic care.

Highlights

  • Adequate care for individuals living with chronic illnesses calls for a healthcare system redesign, moving from acute, disease-centered to patient-centered models

  • The provision of high quality and accessible care is a challenge for the health care system and the society as a whole [3]

  • Recent publications from the European Commission and the European Union Policy Forum summarize the burden of chronic diseases [4,5]: 40% of the population in Europe above the age of 15 is reported to have a chronic disease; such diseases are responsible for 86% of deaths

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Summary

Introduction

Adequate care for individuals living with chronic illnesses calls for a healthcare system redesign, moving from acute, disease-centered to patient-centered models. The World Health Organization (WHO) defines a chronic disease as requiring, “...ongoing management over a period of years or decades” [1]. Chronic diseases are responsible for over three quarters of the global burden of disease in industrialized countries [1,2]. Ill persons often suffer from several problems: fifty to seventy percent of individuals over the age of 70 have at least two disorders [7]. People with chronic diseases have broader needs like more intensive medical, psychological, psychosocial, social and spiritual support [9]

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