Abstract

ABSTRACT.Dementia is a life-threatening and stigmatizing condition, with devastating impacts on the patient's personal identity and caregivers. There are many barriers to an effective diagnosis disclosure of dementia, including fear of causing distress, uncertainty of diagnosis, caregivers’ objection and lack of training in communication skills in undergraduate medical schools. Although some studies have been published on how to help physicians deliver an Alzheimer's disease diagnosis, no specific protocol has been published yet. The SPIKES protocol is a didactic approach designed to deliver bad news related to cancer, but it has been used globally and in a variety of clinical settings, including the teaching of communication skills to medical students and residents. It is known, however, that the cognitive impairment of Alzheimer's disease and other dementias may limit the understanding of the diagnosis’ complexity; hence, a few adaptations of this model were made after reviewing the current literature on dementia diagnosis disclosure. The suggested SPIKES-D protocol seems to encompass current guidelines about the communication of the diagnosis of dementia, keeping its didactic approach on breaking bad news and helping fulfill the gaps in this topic.

Highlights

  • ABSTRACTV. aDneemsesnatiGa iifsfocnhiadraecMtereizdeedirboys aNudnecelsinPe iinnhmeieromoPreyi,xloatnog1uag, eR,opsrioabnleemV-isaonlvainZguzaandDiinnizo1the,r cognitive domains that affect a person’s ability Ctolépceirofodrme OevlievreyidraayGaoctdiveiitrieosJaunndiosro2cial functioning

  • To ensure we had a comprehensive view of the delivery of the diagnosis of dementia, we conducted a literature review on PubMed, SciELO and Google Scholar databases between June 2018 and October 2019, using the search terms “bad news”, “dementia”, “diagnosis”, “disclosure”, “deliver”, “communication”, “Alzheimer”

  • Their instructions were meshed with the original SPIKES protocol to adapt it to a dementia setting

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Summary

Introduction

ABSTRACTV. aDneemsesnatiGa iifsfocnhiadraecMtereizdeedirboys aNudnecelsinPe iinnhmeieromoPreyi,xloatnog1uag, eR,opsrioabnleemV-isaonlvainZguzaandDiinnizo1the,r cognitive domains that affect a person’s ability Ctolépceirofodrme OevlievreyidraayGaoctdiveiitrieosJaunndiosro2cial functioning. Designed to deliver bad news related to cancer, but it has been used globally and in a variety of clinical settings, including the teaching of communication skills to medical students and residents. É consensual que o comprometimento cognitivo é um importante fator de risco para o desenvolvimento de incapacidades funcionais. Entretanto, é sabido que o declínio cognitivo inerente à doença de Alzheimer e outras demências pode limitar a compreensão da complexidade do diagnóstico, tendo sido realizadas, portanto, algumas adaptações nesse protocolo após revisão da literatura acerca da comunicação do diagnóstico das demências.

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