Abstract

BackgroundPeople with intellectual disability (ID) face considerable barriers to accessing psychiatric health care, thus there is a risk for health disparity. The aims of the present study were 1) to compare specialist psychiatric health care utilization among older people with ID to that with their age peers in the general population, taking into account demographic factors and co-morbidities associated with specialist psychiatric health care utilization and 2) to determine a model for prediction of specialist psychiatric health care utilization among older people with ID.Material and methodsWe identified a national cohort of people with ID (ID cohort), aged 55+ years and alive at the end of 2012 (n = 7936), and a referent cohort from the general population (gPop cohort) one-to-one matched by year of birth and sex. Data on utilization of inpatient and outpatient specialist psychiatric health care, as well as on co-morbidities identified in either psychiatric or somatic specialist health care, were collected from the National Patient Register for the time period 2002–2012.ResultsAfter adjusting for sex, age, specialist psychiatric health care utilization the previous year, and co-morbidities, people in the ID cohort still had an increased risk of visits to unplanned inpatient (relative risk [RR] 1.95), unplanned outpatient (RR 1.59), planned inpatient (RR 2.02), and planned outpatient (RR 1.93) specialist psychiatric health care compared with the general population. Within the ID cohort, increasing age was a predictor for less health care, whereas psychiatric health care the previous year predicted increased risk of health care utilization the current year. As expected, mental and behavioral disorders predicted increased risk for psychiatric health care. Furthermore, episodic and paroxysmal disorders increased the risk of planned psychiatric health care.ConclusionsOlder people with ID have a high need for psychiatric specialist health care due to a complex pattern of diagnoses. Further research needs to investigate the conditions that can explain the lesser psychiatric care in higher age groups. There is also a need of research on health care utilization among people with ID in the primary health care context. This knowledge is critical for policymakers’ plans of resources to meet the needs of these people.

Highlights

  • People with intellectual disability (ID) face considerable barriers to accessing psychiatric health care, there is a risk for health disparity

  • After adjusting for sex, age, specialist psychiatric health care utilization the previous year, and comorbidities, people in the ID cohort still had an increased risk of visits to unplanned inpatient, unplanned outpatient (RR 1.59), planned inpatient (RR 2.02), and planned outpatient (RR 1.93) specialist psychiatric health care compared with the general population

  • Older people with ID have a high need for psychiatric specialist health care due to a complex pattern of diagnoses

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Summary

Introduction

People with intellectual disability (ID) face considerable barriers to accessing psychiatric health care, there is a risk for health disparity. It is increasingly recognized that people with intellectual disability (ID) face considerable barriers to accessing psychiatric health care [1,2,3,4,5]. There is a risk for health disparity [6], if there are population-specific differences in access to health care or in health outcomes [7]. Most of the variation was due to differences in diagnostic criteria, and in how the specific samples were obtained Albeit of these divergent figures, psychiatric disorders are more prevalent among adults with ID than in the adult general population [8, 9]. Research regarding psychiatric health care utilization among older people with ID is scarce [15], and the present study addresses this knowledge gap

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