Abstract

This article draws on the findings of the EU Framework 7 project DISCIT to explore the living situation of people with disabilities a decade after the adoption of the UN Convention on the Rights of Persons with Disabilities in nine European countries representing different welfare state models and different stages in the process of deinstitutionalisation. A review of the research literature, policy and available statistics was combined with interviews with key informants in each country to explore the current living situation, changes over time and the barriers to, and facilitators for change. The article focuses in particular on whether people are experiencing opportunities for social inclusion on an equal basis with others. Although a lack of available data hampered conclusions on living situation, it was clear that there had been some change in terms of policy and funding streams available to support community living. Some countries had moved slightly towards community living, while others reported more people in institutions or the development of bigger services in the community. There was evidence of continued inequality in the living situation and full inclusion of people with disabilities, with those with intellectual disability and psychosocial disabilities being the most affected. In terms of barriers (and consequently facilitators) there were three sources: 1) policy, 2) social care and support systems, and 3) awareness, attitudes and advocacy. The need to involve people with disabilities in policymaking and the need for a co-ordinated approach between all actors in the disability sector was seen as critical for achieving further change.

Highlights

  • IntroductionSocial inclusion has long been considered a key element of quality of life (see, for example, Schalock et al, 2002) and is intrinsically related to many other key concepts such as (active) citizenship (DISCIT, 2013)

  • Social inclusion has long been considered a key element of quality of life and is intrinsically related to many other key concepts such as citizenship (DISCIT, 2013)

  • This article aims to 1) map what is already known about the living situation and inclusion of people with disabilities through existing research, official statistics and from those working in the field in each country, and 2) identify barriers and facilitators to achieving widespread community living

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Summary

Introduction

Social inclusion has long been considered a key element of quality of life (see, for example, Schalock et al, 2002) and is intrinsically related to many other key concepts such as (active) citizenship (DISCIT, 2013). Social Inclusion, 2018, Volume 6, Issue 1, Pages 94–109 nity and to be actively participating in, and contributing to, that community (O’Brien, 1987; Mansell & BeadleBrown, 2012; Miller & Katz, 2002) The latter is sometimes referred to as having “a valued role” (Wolfensberger, 2000). The importance of both presence in the community and active participation is echoed in the UN Convention on the Rights of Persons with Disabilities (UN CRPD; United Nations, 2006), in particular in Articles 19, 29 and. Article 19 gives people with disabilities the right to a home in the community like everyone else, choice over their living situation and support for full inclusion and participation in the community. Article 19 uses “with choices equal to others”, “opportunity to choose their place of residence and where and with whom they live on an equal basis with others” and “Community services and facilities for the general population are available on an equal basis to persons with disabilities”

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