Abstract

Background and context: As part of the National Cancer Strategy 2017-2026, the NCCP aims to improve the experience and care for cancer survivors. A key objective of survivorship care is to empower patients to achieve their best possible health outcomes while living with and beyond a diagnosis of cancer. Aim: To develop a guide to provide a support on sexual well-being for women who have completed cancer treatment of breast cancer; gynecologic cancer; bowel, rectal and anal cancer; or bladder cancer. Strategy/Tactics: A project design team was established with stakeholders including healthcare professionals and patients. Program/Policy process: The guides were designed to facilitate conversation around what is a sensitive subject for many people. Having cancer may change the relationships a cancer survivor has with their family and friends; it is natural to need some time to adjust. But while cancer treatment may affect sexuality, sex life doesn't have to end. The guide was reviewed by patient groups prior to printing. It is approved by National Adult Literacy Agency (NALA). The guide was nationally distributed to all clinical areas and is available on the Web. Outcomes: The final publication is entitled Sexual Well-Being After Breast or Pelvic Cancer Treatment: A Guide for Women. It gives details of treatments that may help improve sexual well-being and encourages women to be their own strongest resource. It includes advice on how to talk about sexual well-being, how to create physical and emotional intimacy, and what to do if you are not in a sexual relationship but would like to be. The guide is a companion to the previously published Information for Men on Sexual Well-Being After Pelvic Cancer Treatment, which has been widely used by men to understand the sexual changes caused by cancer treatment. The guide was launched in January 2018. With support from HSE communications it was promoted across social media. It received a positive response with the guides requested nationally. The guide was also distributed to all the cancer centers, support services, and primary care centers. What was learned: Healthcare professionals find it difficult to discuss sexuality with their patients and this booklet allows sexuality to be discussed. Workshops will be required with healthcare professionals to empower themselves and their patients to address the issue of sexuality in survivorship.

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