Abstract
In this article I present an autoethnography in the form of a quest narrative linked as a self‐reflexive text to my continuing research of children and adults with spina bifida. My story centers on the themes of chronic illness, pain and sexuality, highlighting gaps in the literature related to these topics. I narrate my story as a manifesto for women with physical impairments to break their silence and talk about their sexuality. I recommend autoethnography as a method of understanding disability as embodied. Faustus: Now tell me, what says Lucifer thy lord? Mephistopheles: That I shall wait on Faustus whilst he lives, So he will buy my service with his soul. (Christopher Marlowe, Dr Faustus)
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