Self-management groups for people with dementia and their spousal caregivers. A randomized, controlled trial. Baseline findings and feasibility

Abstract

BackgroundNo previous studies have investigated the effectiveness and feasibility of self-management groups for people with dementia and their caregivers. PurposeWe present the baseline findings of a randomized controlled trial examining the effectiveness of a psychosocial group intervention to enhance self-management skills of persons with dementia and their spouses and have evaluated the feasibility of the intervention. Subjects and methodsAltogether 136 individuals with dementia living with their spousal caregivers in the community were recruited from the memory clinics. They were randomized into two arms: group-based self-management intervention (n=67 couples) and controls (n=69 couples). The patients and spouses met in separate closed groups once a week for 8weeks. Intervention sessions were based on discussions, including topics according to participants’ preferences. Their aim was to enhance participants’ self-efficacy, problem-solving skills and peer support. Anonymous feedback from the intervention group was collected at 3months. ResultsThe mean age of participants with dementia was 76.8years, 51 (38%) were females, and 98 (72%) were at a mild stage of dementia. Cognitive status was poorer in the intervention group than in controls [MMSE; 19.9 (SD 5.7) vs. 21.7 (SD 3.7), P=0.04]. The participation rate in-group sessions was high among patients (93%, range 86–98%) and caregivers (93%, range 86–99%). Participants described the group sessions as beneficial and supportive. ConclusionWe have successfully randomized 136 dyads in a self-management group rehabilitation trial. The feedback from participants was favourable, and the drop-out rate during the first 3months was low.