Abstract
BackgroundPeople with recently acquired spinal cord injury (SCI) experience changes in physical, social and psychological aspects of their lives. In the last decades, attention has grown for aspects of self-management and self-efficacy in SCI research. However, we still do not know what the self-management and self-efficacy outcomes of first rehabilitation are and whether utilizing these skills may prevent secondary health conditions (SHCs) and increase participation and psychological adjustment early after SCI.ObjectiveTo describe the course and determinants of self-management and self-efficacy during and after first SCI rehabilitation; and to determine theory-based associations between self-management and self-efficacy with SHCs, participation and psychological adjustment.MethodsMulticenter prospective longitudinal cohort study. All people with a newly acquired SCI admitted to one of the 8 specialized SCI rehabilitation centers in the Netherlands will be considered for inclusion in this study. Main assessments will take place during the first and last week of admission and 3, 6 and 12 months after discharge. The target sample is 250 participants. The primary outcomes are self-management (knowledge and execution of self-care) and self-efficacy (confidence in the ability to manage the consequences of SCI and of self-care). Secondary outcome measures are SHCs, participation and psychological adjustment to SCI.ResultsThe first results with the complete set of data are expected in June 2019.ConclusionsThis protocol describes the SELF-SCI cohort study investigating self-management and self-efficacy of initial inpatient SCI rehabilitation. Second, associations will be investigated with SHCs, participation and psychological adjustment early after onset of SCI, until 1 year after discharge. The results will be used to test theories about motivation to perform health-promoting behaviors and adjustment to SCI.
Highlights
OverviewThe global incidence of spinal cord injury (SCI) is estimated between 40 and 80 new cases per million population per annum [1]
The first aim of this study is to describe the course of self-management and self-efficacy during the first SCI rehabilitation period until one year after discharge
The SELF-SCI Cohort study investigates the changes in self-management and self-efficacy of people with a recently acquired SCI during the first initial rehabilitation until one year after discharge
Summary
OverviewThe global incidence of spinal cord injury (SCI) is estimated between 40 and 80 new cases per million population per annum [1]. On the long term (>5 years post-injury), people with SCI report an average of 8 SHCs in the previous year [15], their participation in employment is lower compared to society as a whole [16], and more than a third experience mild to severe chronic mental health problems [9]. These findings are similar to results of studies in other countries [17,18,19].
Sign-in/Register to view highlights & summary Sign-in/Register to access full text options 
Talk to us
Join us for a 30 min session where you can share your feedback and ask us any queries you have
Schedule a call
