Abstract
This is an open-access article distributed under the terms of the Creative Commons Attribution 4.0 International License (CC-BY 4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
Highlights
Article three of the Universal Declaration of Human Rights states that everyone has the right to liberty (UN 1948)
Phenomenology, offering rich accounts on intersubjectivity and the minds of others (Zahavi 2019), has served as an overall guide in the endeavour of describing everyday living in ways that can inform the theoretical discussion regarding the concept of self-determination
For persons with profound intellectual and multiple disabilities (PIMD), profound dependency involves having some actions performed by others, including the professionals in our study
Summary
Article three of the Universal Declaration of Human Rights states that everyone has the right to liberty (UN 1948) This is further described in the Convention on the Rights of Persons with Disabilities (CRPD) (UN 2006), upholding the overall principles of ‘respect for inherent dignity, individual autonomy, including the freedom to make one’s own choice and independence of person’. This depends upon self-determination, a core principle throughout the human rights (Skarstad 2018). This includes for instance research concerning preference assessments (Fleming et al 2010), technological devices (Roche et al 2015) and legal rights (Murphy, Clegg & Almack 2011)
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