Abstract
ObjectiveTo develop a reliable and valid Chinese version of the Derriford Appearance Scale 59 (DAS 59) instrument for assessing the self-consciousness of appearance in Chinese patients with cleft lip.MethodsThe original DAS 59 instrument was translated into Mandarin, back-translated, and culturally adapted among the Chinese population, following the protocol of the original DAS 59. The validation of the Chinese DAS 59 instrument was estimated on 443 adult participants including 213 subjects with a history of cleft lip with/without palate (CL/P, study group) and 230 normal subjects without facial appearance concern (control group). The reliability was estimated by Cronbach's α coefficient and Guttman's split-half coefficient. Content validity was tested using the Spearman correlation coefficient, while discriminant validity was tested by the Mann–Whitney U test.ResultsThe overall internal consistency of Chinese DAS 59 was excellent; Cronbach's α was 0.951 (α = 0.965 and 0.959 in the study and control groups, respectively). Further, Guttman's split-half coefficient was excellent in the study group (0.935) and control group (0.901). The validity of content was good with an acceptable correlation between all the items and domains. The construct validity through the discrimination was good with a statistically significant difference in most domains between the two groups. Patients with CL/P had more concern about the general self-consciousness and social self-consciousness of appearance. They also showed a good self-concept score.ConclusionThe Chinese version of DAS 59 demonstrated acceptable reliability and good construct and discriminant validity. It can be used for the research and assessment of the psychological state and quality of life for Chinese patients with cleft lip as well as other appearance problems and concerns.
Highlights
Cleft lip with/without palate (CL/P) is a common congenital developmental malformation of the oral and maxillofacial region, accompanied by severe physical defects and various psychological problems [1]
A backward translation of the Chinese Derriford Appearance Scale (DAS) 59 tool into English was conducted by an individual with experience in English linguistics who was not aware with the health-related quality of life (HRQoL) inventories
The face validity of Chinese Derriford Appearance Scale 59 (DAS 59) was good as confirmed by the expert committee and was further confirmed by a review of literature
Summary
Cleft lip with/without palate (CL/P) is a common congenital developmental malformation of the oral and maxillofacial region, accompanied by severe physical defects and various psychological problems [1]. Disfigurement and deformity caused by congenital malformations, diseases, trauma, and burns in addition to their treatments lay apparently various individuals at a social drawback with a danger of heavy trouble and social brokenness [4,5,6]. The psychological aspects of deformity should be estimated well, as regular social communication for those with appearance issues is a foundation of unalleviated stress, anxiety, and pain. It can be used with surgical interventions to test variations from baseline to post-operation stage, like the benefit inferred from pre- and post-operative photographs [7]
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