Abstract

IntroductionThis study investigated the functional ability of children with arthrogryposis, aged 6 months to 7.5 years, in South Africa, with the focus on the execution of age-appropriate self-care tasks. The level of independence, amount of caregiver assistance and modifications used during each task were ascertained, to assist in guiding occupational therapy intervention.MethodThis study was based on a quantitative cross-sectional design, with 19 participants divided into age groups assessed using the Pediatric Evaluation of Disability Inventory (PEDI).ResultsThe infant and toddler group performed above expected levels in the self-care domain, whereas the preschool and school-aged group performed below the expected level. A significant correlation between the amount of caregiver assistance needed and the participants’ level of independence was found especially in the preschool and school-aged group. There was little use of modifications even with occupational therapy intervention and participants relied on compensatory methods and assistance to execute self-care tasks.ConclusionThis study indicated that children with arthrogryposis need intervention to promote the independent execution of self-care tasks, and reduce the need for caregiver assistance. Therapists are encouraged to make use of modifications in furthering the age-appropriate independence of this population.

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