Abstract

In the past decade, there has been greater attention given to the role of religion and spirituality in coping with Alzheimer's disease and related dementias. This research has focused largely on caregivers with much less attention given to those afflicted with the disease. This qualitative study examines the role of religion and spirituality in the lives of persons with dementia. Quotes from 27 individuals with Alzheimer's and one person with frontal temporal dementia reveal the following themes: the role of religion or spirituality in finding meaning in dementia; the role of religion or spirituality in coping with the disease; the influence of dementia on religious or spiritual practices; and the influence of dementia on faith. Findings illuminate the importance of including the perspective of the person with dementia in assessments and interventions aimed at understanding and addressing the spiritual needs of families.

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