Abstract
AbstractPurpose: Health-related quality of life (HRQOL) of adults living with a chronic condition or disease is an important patient-reported outcome. There is a need to better understand the socia...
Highlights
IntroductionAdults living with a chronic condition that limits activity (physical/social/mental) and contributes to disability, face many societal and personal challenges
Adults living with a chronic condition that limits activity and contributes to disability, face many societal and personal challenges
This study found that living with a chronic condition has important implications for the health-related quality of life (HRQOL), social function
Summary
Adults living with a chronic condition that limits activity (physical/social/mental) and contributes to disability, face many societal and personal challenges. A significant advantage of PROMIS measures is that they are brief tools that are all scored on the same T-score metric, with the mean of 50 that represents the mean of the PROMIS US general population, and a standard deviation of 10 These PROMs were developed for general populations, not disease specific, and for those living with chronic conditions. PROMIS has developed several self-report adult measures to assess for a person’s perceptions of their symptoms, function, behavior, and feelings in multiple domains, including social health. PROMIS defines this sub-domain as the involvement in, and satisfaction, or contentment, with one’s usual social roles in life’s situations and activities (e.g. family/friends and work responsibilities) (Bode, Hahn, DeVellis, & Cella, 2010; Castel et al, 2008). This paper is focused on measuring adults’, living with chronic conditions, self-reported satisfaction with participation in social roles (SPSR), such as work, marital and family responsibilities.
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