Abstract
Introduction: Preventive care guidelines for patients with Inflammatory Bowel Disease (IBD) emphasize the need for a patient-centered interdisciplinary approach, with assessment and management of the patient’s physical and mental health as well as the IBD. There is no data about compliance with current IBD preventive care guidelines in Puerto Rico. This study aims to evaluate current IBD preventive care in the clinic, and knowledge among patients and gastroenterologists about the preventive care guidelines. The 3-phase study includes retrospective medical record review, an anonymous online survey of gastroenterologists, and an anonymous survey of patients. We report the results of the patient survey. Methods: Adult patients with an established diagnosis of at least 6 months of ulcerative colitis (UC), Crohn’s disease (CD) or indeterminate colitis (IC), were recruited from the IBD Clinics and through IBD-related social media. Questionnaires were filled in the clinic and online using Google forms. Statistical analysis was performed using descriptive statistics. Comparisons of proportions and means between groups was based on Fisher’s exact and chi square tests. The study was approved by the MSC IRB. Results: 83 patients completed the survey, 42 from the clinics and 41 through social media. 60% had CD, 47.4% were diagnosed more than 10 years ago, 57.9% were younger than 38 years old and 68% were on immunosuppressants/biologics. 83.13% and 60.24% of patients knew that COVID and Influenza vaccines were indicated, respectively. However only 42.17%, 36.14%, 32.53% and 31.33% of patients knew about indications for HPV, pneumococcal, varicella and zoster vaccines, respectively. There was a significant difference about knowledge regarding screening for latent TB (p=0.019), anxiety and depression (p= 0.03) and smoking status (p=0.033) between CD and UC/IC patients, as shown in Table. Conclusion: Our study showed a significant lack of knowledge about IBD preventive care in patients. Strategies to improve patient education are needed. The results of the review of records from the clinic as well as the knowledge of gastroenterologists will point out other deficiencies in the healthcare system and help design methods to improve patient care. Another aspect that needs to be explored is access to preventive measures such as vaccines. Table 1. - Note: χ21, Fisher exact2 Note Variable CD UC/IC Total p-value Latent TB 0.0192 Yes 37 (46.84%) 15 (18.99%) 52 (65.82%) No 3 (3.80%) 2 (2.53%) 5 (6.33%) Don't know 8 (10.13%) 14 (17.72%) 22 (27.85%) Total 48 (60.76%) 31 (39.24%) 79 (100.00%) Anxiety and depression 0.0032 Yes 46 (56.79%) 24 (29.63%) 70 (86.42%) No 1 (1.23%) 2 (2.47%) 3 (3.70%) Don't know 1 (1.23%) 7 (8.64%) 8 (9.88%) Total 48 (59.26%) 33 (40.74%) 81 (100.00%) Smoking cessation 0.0332 Yes 48 (59.26%) 27 (33.33%) 75 (92.59%) No 0 (0.00%) 1 (1.23%) 1 (1.23%) Don't know 1 (1.23%) 4 (4.94%) 5 (6.17%) Total 49 (60.49%) 32 (39.51%) 81 (100.00%) Due to rounding error, percentages may not sum to 100%.
Talk to us
Join us for a 30 min session where you can share your feedback and ask us any queries you have
Disclaimer: All third-party content on this website/platform is and will remain the property of their respective owners and is provided on "as is" basis without any warranties, express or implied. Use of third-party content does not indicate any affiliation, sponsorship with or endorsement by them. Any references to third-party content is to identify the corresponding services and shall be considered fair use under The CopyrightLaw.