Abstract

Abstract There are 16 centres in the UK offering specialist neuromuscular services; some very large, with five full time neuromuscular physiotherapists and additional research physiotherapists. Others are small having one or two clinics per month. There are no specific qualifications in the UK that actually designate a paediatric physiotherapist, although there is the qualification of a masters degree in paediatric physiotherapy. This is an academic qualification and does not confer experience or expertise in any specific area. Many newly qualified therapists however are going straight to a Masters degree in the hope of securing future employment. So which physiotherapists are qualified to assess and treat children with neuromuscular disorders? Who teaches them and who teaches the teachers? The Association of Paediatric Physiotherapists (APCP) a clinical interest group and the official voice of paediatric physiotherapy in the UK has initiated a programme of published competencies for physiotherapists; the standards for physiotherapists working in neonatology having been completed. The standards for physiotherapists working in neuromuscular disorders are now being agreed by the relevant stakeholder physiotherapists in the field, based where possible, on published evidence. Understanding the underlying pathology, knowing the presenting features and progression of individual conditions; and managing the many aspects of treatment and rehabilitation are covered. The topics include assessment, respiratory treatment, mobility, management of contractures and deformity and appropriate exercise and activity. Once finalised, these topics will form the basis for development of expert clinical practise and will enable the running of courses in advanced practise.

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