Report on the second Intracranial Hypertension Research Foundation conference

Emanuel Tanne

doi:10.1186/1743-8454-5-13

Abstract

This report highlights a conference designed for patient education on elevated cerebrospinal fluid (CSF) pressure. The conference centered on chronic intracranial hypertension (IH) including the latest research and clinical information. It was sponsored by the Intracranial Hypertension Research Foundation and held at the University of Texas Medical School, Houston, on June 21–22nd, 2008.

Highlights

The Intracranial Hypertension Research Foundation (IHRF) in Vancouver, Washington, promotes research into the pathophysiological basis of chronic intracranial hypertension (IH) and the evolution of better treatment and, a cure
This report highlights a conference designed for patient education on elevated cerebrospinal fluid (CSF) pressure
IHRF held the first conference on chronic IH in 2006 at the Oregon Health & Science University (OHSU)

Summary

Background

The Intracranial Hypertension Research Foundation (IHRF) in Vancouver, Washington, promotes research into the pathophysiological basis of chronic IH and the evolution of better treatment and, a cure. It encourages research, and facilitates understanding and management of chronic primary and secondary IH, through research, training and education programs worldwide. IHRF sponsors programs for researchers and clinicians, as well as educational conferences for patients and families. The Houston conference was attended by 108 patients and family members who heard presentations by nine clinicians and researchers. The conference allowed patients to speak about personal experiences with the disorder. IHRF held the first conference on chronic IH in 2006 at the Oregon Health & Science University (OHSU). Patient education importantly improves patient insight about the disorder. It facilitates active cooperation with their physicians. Patient education is vital in controlling health care costs

Discussion

Conclusion