Abstract
to identify the use of religious/spiritual coping in informal caregivers of children with cleft lip and/or palate, dysphagic, powered exclusively by probe. descriptive and cross-sectional study, including 30 informal caregivers. For data collection, a Sociodemographic Questionnaire and the Brief Religious/Spiritual Coping Scale were used. For statistical analysis, ANOVA, Student's t and Spearman's correlation tests were used, with a significance level of 5%. the use of religious/spiritual coping was high among participants (mean=3.71), with a predominance of positive (mean=3.30) compared to negative (mean=1.88). It was evident that the greater the reported importance of religiosity/spirituality in the participants' lives, the greater the positive coping (p=0.001). informal caregivers used positive religious/spiritual coping as a way of coping with care demands related to the child's health condition. These findings point to the importance of including spirituality/religiosity as health indicators.
Highlights
Cleft lip and/or palate stand out among the malformations that affect the face, with a prevalence of 1:700 births
Religious/spiritual coping in informal caregivers of children with cleft lip and/or dysphagic palate Farinha FT, Bom GC, Manso MMFG, Prado PC, Matiole CR, Trettene AS
The sample consisted of 30 mothers, whose mean age was 31.97 years (SD = 8.64)
Summary
Cleft lip and/or palate stand out among the malformations that affect the face, with a prevalence of 1:700 births It has a multifactorial etiology, including genetic and environmental factors. Associated syndromes include the Pierre Robin Sequence, Stickler, Treacher Collins, Van der Woude, among others[1]. In these specific cases, the functional aspects may be compromised, including feeding, that is, these children usually evolve with oropharyngeal dysphagia, in which the act of eating orally will be compromised[2]. Feeding becomes a risky and frustrating process, both for the child and for their parents and/or caregivers, that is, a chronic condition. In these cases, feeding tubes are often used, which make feeding viable and significantly contribute to these children’s having a favorable clinical condition[2,3]
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