Reintegration and rehabilitation after spinal cord injury: a small-scale pilot study

Abstract

Aims Despite the fact that community reintegration is rapidly becoming a significant area of clinical, policy and research concern, research into reintegration after spinal cord injury (SCI) within the UK is sparse. This small-scale pilot study aimed to explore the experiences of reintegration for people living with SCI in the UK, and how rehabilitation was perceived to have helped or hindered this reintegration. Methods Seven participants between 5–12 years, post-SCI, and who lived in the community were recruited from local sport and activity groups. All participants took part in a single semi-structured interview. Interviews were transcribed verbatim and sent to each respondent for validation. Transcripts were then analysed. Findings Themes that emerged regarding the individuals' experiences of reintegration and rehabilitation were: restoring independence, regaining life roles, understanding and redefining, individuals' and family and friends' attitudes, professionals' attitude and approach, dissatisfaction and unmet needs, transition to home, and lack of community rehabilitation and follow-up services. Conclusions Although only a small-scale study, the findings suggest potential areas for improving SCI rehabilitation. They also support further research that will establish whether current rehabilitation services are successful in meeting the needs of those with SCI.