Abstract
ObjectiveIdentifying existing recruitment and methodological issues within dementia research conducted in UK studies that included ethnic minorities.MethodsWe searched for and included any publication detailing dementia research in the UK that included any ethnic minority. The search results and all titles and abstracts were screened according to the inclusion criteria followed by screening of the full texts. We extracted data regarding the recruitment and methodological issues faced by the researchers. This data was combined and listed, and related issues were grouped into overarching themes and subthemes.ResultsOf 52 publications suitable for analysis, 33 provided data collated into six themes: attitudes and beliefs about dementia in ethnic minority communities, recruitment process, data collection issues, practical issues, researcher characteristics, and lack of published research and normative data. These themes allowed us to identify three areas responsible for addressing these recruitment and methodological issues: community and patient education, health services, and researchers' training.ConclusionsThis is the first review identifying recruitment and methodological issues within UK dementia research that included ethnic minorities. We now have a compilation of reported existing issues and a framework of areas responsible for addressing them and devising solutions.
Highlights
The ethnic minority population within the United Kingdom (UK) continues to increase, with present numbers accounting for 14% of the population (Office for National Statistics, 2016)
We propose identifying all existing recruitment and methodological issues within dementia research conducted in UK studies that included ethnic minorities
The search strategy was devised within the team (CK, AB, and WW; Blakemore et al, 2018) to identify all studies related to dementia and ethnicity where ethnicity referred to the specific UK-based ethnic minority groups as reported across the 2011 Census (Office for National Statistics, 2016)
Summary
The ethnic minority population within the United Kingdom (UK) continues to increase, with present numbers accounting for 14% of the population (Office for National Statistics, 2016). Within these groups, there is an increasing ageing population, due to the timing of original migration and with more of the older population from these groups choosing to permanently reside in the UK (Lievesley, 2010; Richards et al, 2000). Ethnic minorities account for 25,000 current dementia diagnoses (Department of Health, 2009), and this is expected to double by 2026 (Lakey, Chandaria, Quince, Kane, & Saunders, 2012). It is expected that the numbers are higher than reported, with predictions showing that while dementia overall will increase twofold within the 40 years, it is expected to increase sevenfold within ethnic minorities (Alzheimer's Society, 2019)
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