Abstract
ObjectivesPrevious studies have highlighted the need to offer targeted interventions to strengthen the wellbeing of family members in families with children with neurodevelopmental disorders (NDD). Interventions for this target group require research and development. The purpose of this study was to test a new family intervention: Dialogical Family Guidance (DFG).MethodsFamilies of children with NDD were randomized into an intervention group that was delivered DFG and a comparison group provided with ordinary clinical treatment. The Family Functioning, Family Health and Social Support (FAFHES) and the DFG instrument were used to collect data at baseline and after 3 months. Repeated measure analysis of variance (ANOVA) was used as an analytical strategy.ResultsThere was a significant within-subjects effect of time on family health and social support, indicating that family health and social support increased in both groups over time. There was also a significant between-subjects effect of group and interaction between time and group on social support, indicating that social support increased more in the intervention group than in the control group. Managing in daily life and the relationship between parents were associated with family functioning and family health.ConclusionDFG can strengthen parental experiences of social support. Managing in daily life, relationship between parents, practical guidance, psychoeducation, dialogue, and receiving positive feedback on parenting were strengthening factors during DFG. However, the results of this study must be considered as only preliminary, as they relate only to parental perceptions of the intervention effects.Trial registrationClinicalTrials.gov NCT04892992 (retrospectively registered).
Highlights
IntroductionBackground variables nGirl Boy Age (years)< 7 ≥ 7 Child’s daytime activityIn daycare At school Diagnose of the childAttention-deficit/hyperactivity disorder Autism spectrum disorder (e.g., Aspergers syndrome)Delayed milestone Speech and language disordersSpecific learning disorderOther (motoric or psychiatric problems, unclear)First concern towards the child’s neuropsychiatric problems1–2 years > 2 How the child’s neurodevelopmental disorders (NDD) problems affect his/her daily lifeNo symptom/hardly any symptoms Symptoms occasionally Symptoms oftenSymptoms disturbing all the time Earlier visit to the clinic/hospital
Background variables nGirl Boy Age< 7 ≥ 7 Child’s daytime activityIn daycare At school Diagnose of the childAttention-deficit/hyperactivity disorder Autism spectrum disorder (e.g., Aspergers syndrome)Delayed milestone Speech and language disordersSpecific learning disorderOtherFirst concern towards the child’s neuropsychiatric problems1–2 years > 2 How the child’s neurodevelopmental disorders (NDD) problems affect his/her daily lifeNo symptom/hardly any symptoms Symptoms occasionally Symptoms oftenSymptoms disturbing all the time Earlier visit to the clinic/hospital
The parents who felt that the quality of the relationship between the parents was good or excellent (Md 4.3, Q1 3.8, Q3 4.7) had better family health (U 123.5, p < 0.001) than those parents who felt that the quality of the relationship was moderate, poor, or very poor (Md 3.7, Q 1 3.4, Q3 3.8)
Summary
Background variables nGirl Boy Age (years)< 7 ≥ 7 Child’s daytime activityIn daycare At school Diagnose of the childAttention-deficit/hyperactivity disorder Autism spectrum disorder (e.g., Aspergers syndrome)Delayed milestone Speech and language disordersSpecific learning disorderOther (motoric or psychiatric problems, unclear)First concern towards the child’s neuropsychiatric problems1–2 years > 2 How the child’s NDD problems affect his/her daily lifeNo symptom/hardly any symptoms Symptoms occasionally Symptoms oftenSymptoms disturbing all the time Earlier visit to the clinic/hospital. < 7 ≥ 7 Child’s daytime activity. In daycare At school Diagnose of the child. Attention-deficit/hyperactivity disorder Autism spectrum disorder (e.g., Aspergers syndrome). First concern towards the child’s neuropsychiatric problems. 1–2 years > 2 How the child’s NDD problems affect his/her daily life. No symptom/hardly any symptoms Symptoms occasionally Symptoms often. Symptoms disturbing all the time Earlier visit to the clinic/hospital
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