Quality of Pediatric Palliative Care Crisis Intervention - A Retrospective Survey

Abstract

In addition to palliative care in the dying phase, the care of sick children and their families is becoming increasingly important in times of crisis of a life-limiting illness. The families are supported by a specialised ambulatory palliative team for children and adolescents (SAPV-team for children and adolescents). The aim of the retrospective survey was to determine the quality of these palliative care crisis interventions for the families. A retrospective questionnaire on medical care and family burden was developed. The "Hospital Anxiety and Depression Scale" was used to measure the burden of the families, and is aimed to assess anxiety and depression symptoms of the relatives. All families who were cared for by the pediatric palliative care team of the Children's and Adolescent Clinic of the University of Erlangen-Nuremberg in the context of crisis interventions between January 2012 and August 2017 received the questionnaire with the request for cooperation. The response rate of the questionnaires was 52,1%. The support and security from the palliative team, the 24-hour on-call service and the support in the organization of medical aids were rated particularly highly. The crisis intervention significantly improved the burden on patients and the family, as well as symptom control and communication. The present study demonstrates the tremendous psychological and physical stress with reduced quality of life of both sick children and their families in crisis situations. Specialized outpatient pediatric palliative care is able to help patients and families.