Abstract

BackgroundThe increase in the number of people with dementia will lead to greater demand for residential care. Currently, large nursing homes are trying to transform their traditional care for residents with dementia to a more home-like approach, by developing small-scale living facilities. It is often assumed that small-scale living will improve the quality of life of residents with dementia. However, little scientific evidence is currently available to test this. The following research question is addressed in this study: Which (combination of) changes in elements affects (different dimensions of) the quality of life of elderly residents with dementia in long-term care settings over the course of one year?Methods/designA longitudinal comparative study in traditional and small-scale long-term care settings, which follows a quasi-experimental design, will be carried out in Belgium and the Netherlands. To answer the research question, a model has been developed which incorporates relevant elements influencing quality of life in long-term care settings. Validated instruments will be used to evaluate the role of these elements, divided into environmental characteristics (country, type of ward, group size and nursing staff); basic personal characteristics (age, sex, cognitive decline, weight and activities of daily living); behavioural characteristics (behavioural problems and depression); behavioural interventions (use of restraints and use of psychotropic medication); and social interaction (social engagement and visiting frequency of relatives). The main outcome measure for residents in the model is quality of life. Data are collected at baseline, after six and twelve months, from residents living in either small-scale or traditional care settings.DiscussionThe results of this study will provide an insight into the determinants of quality of life for people with dementia living in traditional and small-scale long-term care settings in Belgium and the Netherlands. Possible relevant strengths and weaknesses of the study are discussed in this article.Trial registrationISRCTN: ISRCTN23772945

Highlights

  • Introduction to Qualitative Comparative AnalysisIn The comparative political economy of the welfare state

  • The results of this study will provide an insight into the determinants of quality of life for people with dementia living in traditional and small-scale long-term care settings in Belgium and the Netherlands

  • People usually prefer home care over residential care, but for a substantial number of people in the later stages of dementia staying at home is no longer possible [4]

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Summary

Introduction

Introduction to Qualitative Comparative AnalysisIn The comparative political economy of the welfare state. The institutional regime in traditional, large nursing homes with a strongly medical and nursing-based approach, the hospital-like environment and the lack of privacy, has come in for heavy criticism in many countries [5,6,7,8] To address this criticism, many large nursing home organizations are currently transforming their traditional care methods to a more homelike approach by developing small-scale living facilities [9,10,11]. Many large nursing home organizations are currently transforming their traditional care methods to a more homelike approach by developing small-scale living facilities [9,10,11] The number of these small-scale living facilities has been increasing in many countries all over the world, such as Sweden, the United States, Germany, Belgium and the Netherlands. They take a variety of forms and the expansion is taking place at different rates in each country [5,12,13]

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