Abstract
Background: Nephrotic syndrome (NS) is a common kidney disease found in children. Its medical and psychosocial complications can affect the quality of life (QoL). The aim of this study was to have a description on the QoL and its related factors using Pediatric Quality of Life InventoryTM (PedsQLTM). Methods: An analytical descriptive study was conducted on patients, aged 2-18 years old in the outpatient and inpatient ward of nephrology, Department of Child Health, Dr. Cipto Mangunkusumo Hospital, Jakarta, during April 2013âDecember 2013. The assessment of QoL used PedsQLTM 4.0 Chi-square test was performed to get variable with p value Results: 100 NS patients were participated in this study and 19% was found having disturbance in the QoL. Risk factors of disturbance in QoL were: age 5-7 years old, age 13-18 years old, low socio-economic status, father with low education level, and the use of steroid (pConclusions: 19% of NS had disturbance in QoL. The risk factors were children age, low socio-economic and low level education of parents, unexpected child-rearing pattern, duration of illness, and the use of steroid.
Highlights
Nephrotic syndrome (NS) is a common kidney disease found in children
This study have the same result with other studies that showed mostly NS patients were boys (71 - 80%) [7,8,9]
Previous study in Yogyakarta using The Netherland Organization for Applied Scientific Research Academical Medical Centre Child Quality of Life (TACQOL) for NS patient with age 6-15 years old showed that 12.8% of NS children had poor quality of life (QoL) based on parents reports and 18.5% based on children’s reports [5]
Summary
Nephrotic syndrome (NS) is a common kidney disease found in children. Nephrotic syndrome consist of massive proteinuria (> 40mg/m2 BSA/day), hypoalbuminemia (200mg/dL). The Pediatric Quality of life Inventory is an instrument to measure the QoL that has good reliability and could be used for children age 2 until 18 years old. The aim of this study was to have a description on the QoL and its related factors using Pediatric Quality of Life InventoryTM (PedsQLTM). Methods: An analytical descriptive study was conducted on patients, aged 2-18 years old in the outpatient and inpatient ward of nephrology, Department of Child Health, Dr Cipto Mangunkusumo Hospital, Jakarta, during April 2013–December 2013. Duration of illness was related to QoL based on parents and children reports (p
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